Autism Support Group Hosts Informational Gathering
By Chase Jordan
Families and autism professionals came together for support and to share information during Autism Awareness Night.
The Lee's Summit Autism Support Group brought in about 26 service providers and more than 58 guests attended the event Monday, Oct. 1 at the Legacy Christian Church in Lee's Summit.
Vanessa Shields, of Lee's Summit, attended the event and has one son with autism.
"It's so hard to get information," Shields said. "There's really no on e central location that doesn't overwhelm you."
Joyce Lindsey has three sons and one of them is diagnosed with autism.
"It was an excellent turnout," Lindsey said. "I feel that it really served a need in the community. We had people coming from both sides of the state line."
Co-founders Sherri Tucker and Debra Shaumeyer said the purpose of the event was to make families with autistic children aware of available services and to network with other families.
"My phone rang from 9 o'clock until 5:30, and half of them were families that just got a diagnosis in the last week," Tucker said. "There's nowhere to go, so they're going to network and meet other families. That's probably even more important than the providers."
Shaumeyer's 6-year-old son, Austin, was diagnosed with autism near the age of 4.
"We started the group because we have a lot of disappointed families right now in the school district," she said. "Our purpose is to work with the Lee's Summit R-7 School District to make change, to work together as a team. Knowledge is power."
The group's co-founders were pleased with the turnout and the volunteers.
"We had to turn service providers away because we were limited with the space," Shaumeyer said.
Tucker said the gathering helped service providers network with families they would otherwise have difficulty finding.
Kelly Lee, autism education coordinator for the R-7 district and founder of Camp Encourage, attended the event to provide information to guests.
"I think it's wonderful to see so many families and it's wonderful to have this many resources to point those families to and get encouragement and the support that they need," Lee said.
She said there are some 200 students in the district diagnosed with some form of autism.
"Supporting families with children on the spectrum is something that is very close to my heart," Lee said. "I think it's extremely crucial that the district collaborates with parents."
Nancy Michael, of ABC'nD Autism Center in Kansas City, provides services for children 18 months old to children in the fourth grade.
"I met a lot of families interested in the Autism Center and some have been interested in occupational therapy and also just questions about their child's services." Michael said. "I think it's a wonderful opportunity for parents to learn about a vast number of services for children with autism because they can come and see the displays and talk to those people that are part of those programs, and I also think it's a great time for those families to network."
Georgia Mueller, Kansas City regional coordinator for MPACT, said her group works to ensure that all children with special needs receive an education that allows them to achieve their personal goals.
"We teach families how to become advocates for children, so we teach them the laws," Mueller said. "We teach them how to understand their rights and responsibilities and understand the rights and responsibilities of the school, and that way when they go to ask for appropriate service for their students they know that they're standing on solid ground."
Mueller has a son with autism in the Center School District.
"He actually has a pretty severe level and we had to work very hard with our school district to get them to do the right thing," she said. "I know that most school districts would not automatically do what we were able to gain. Most parents don't really like to ask what's appropriate for their child, whatever that my be. It's frustrating."
JJ Ringgold, of Lee's Summit, attended the event and is the parent of an autistic child.
"I got some new information this time about nutrition," Ringgold said. "I felt comfortable talking to them."
Clare Jeffress, of Greenwood has five children and two of them have autism.
"It was very wonderful. I think it should happen every six months." Jeffress said.